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This month's Peer Support Group for Adults with FOP meets from Noon to 1 pm EDT / 18:00 to 19:00 CEST.

The group provides an opportunity to connect and share experiences, suggestions and techniques to navigate challenges brought up in group discussions.

Counseling Psychologist Dr. Al Freedman, who also had a child with a rare disease, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.

Due to the conversational nature of the meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.

Please note: Our August Peer Support Group for Adults with FOP will meet in the evening. The Peer Support Group will return to Noon EDT/18:00 CEST in September.

The FOP Bereaved Families Group is an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.

Join us on Zoom, Thursday, September 10, at 8 pm ET.

Sign up and submit any comments or suggestions in advance by emailing [email protected]

Due to the conversational nature of the meeting, participants must be able to speak and understand English.

Join us Tuesday, September 15 for Day of Giving

The 2026 Journey to Discovery campaign is underway! This year, we’re celebrating the discoveries that have transformed FOP research while looking ahead to the breakthroughs still to come.

Every discovery brings us one step closer to better treatments and, ultimately, a cure. But getting there requires continued investment in the research and drug development that will move the field forward.

Our goal: Raise $510,000 for research and drug development.

100% of donations will go directly to these efforts.

How can you participate?

1. Donate today to support crucial FOP research and help fuel the discoveries still ahead.
2. Start your own fundraiser and rally your family, friends and community to join the journey.
3. Share on social media and help others learn about the progress FOP research has made, the people who have made it possible and why continued research is so important.
4. Mark your calendar for Day of Giving on Tuesday, September 15 — a special day to come together as a community, share stories and help move FOP research forward.

Every breakthrough begins with discovery. Together, we can help fuel the next one.

Register here

The Caregiver Support Group meets monthly from Noon to 1 pm EDT / 18:00 to 19:00 CEST.

Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.

Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.

Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.

Due to the conversational nature of this meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.